Welcome to My Personal Page
Welcome to my fundraising page! I’ve committed to raise funds to benefit cutting-edge brain cancer research through ABC2 by rappelling down the side of a building! On October 7, I will rappel down the Hyatt Regency Crystal City. If you know me, you know this is a big deal for me because I do NOT like heights! However, as a brain cancer survivor, I am excited to take part in this event and raise money for brain cancer research.
I am dedicated to fight this deadly disease. There are almost 700,000 people living with brain tumors and about 80,000 more will receive a primary brain tumor diagnosis this year. Despite the amount of brain tumors, and their devastating prognosis, there have only been four (4) FDA approved drugs to treat brain tumors in the past 30 years. More research is desperately needed. Please consider donating to the cause and making it possible for me to rappel down the side of a very tall building. I need to raise $1500 by the end of October! Every little bit helps.
Thanks in advance for your support!
My Personal Web Log
Why I am doing this
As most of you are aware, last year on March 9, 2016 I had a CT scan that showed a decent size tumor in my left frontal lobe. On March 18, 2016, I had a craniotomy with resection of brain tumor (brain tumor removal). The biopsy showed the tumor was a Stage 2 Diffuse Fibrillary Astrocytoma. At this point, Gracelyn was only a mere 10 WEEKS old. No further treatments were needed because further scans revealed the tumor was fully removed. I did have to take steroids for 4 months and anti-seizure meds for the first 2 weeks. I was then referred to Duke Medical Center's brain oncologist. I have been following up w/ Duke every 2 months since last April. In May 2017, Duke told me I could extend my visits to every 3 months. On top of all this, I have been taking Lyrica since January 2017 to try to control my migraines. In May 2017, I also saw a neurologist who said I have tried enough medications and had enough done to me to be eligible for Botox. The thought of Botox terrifies me, however, I am going to give it a try so I am putting one less medication into my stomach (I have reasons for this too). My next appointment is in July. The picture posted is from an awards banquet for Justin's work. The steroids hadn't made me bloated, swollen, gained a lot of weight, and a moon face yet. That came the following month. Steroids do a number on your body. Over a year later, the bloating and swelling has decreased, but I have not lost the steroid weight yet.
I HATE heights. I'm not even a fan of ferris wheels because of the height. I have chosen to do this event to raise awareness and funds for brain cancer research. More research and treatment options are desperately needed. I need to raise $1500 to be allowed to rappel down the side of the Hyatt Regency Crystal City in Washington, D.C. on Oct. 7, 2017. Please consider donating to make this happen. Every little bit helps. Even if you don't have the money to donate much now, you can always donate, and then come back in a month or so and donate a little more. Whatever works for your finances.
Thank you all for your support and forcing me to come out of my comfort zone!
by Jeanne Miller on Fri, Jun 30, 2017 @ 9:06 AM
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